Introduction

The National Head and Neck Cancer Audit (HANA) focuses on patients who have cancer of the head and/or the neck; excluding tumours of the brain and thyroid cancers. There are about 10,000 new diagnoses of head and neck cancer each year in the UK, and the most common tumour sites are the larynx and oral cavity.

After more than ten years, the provision, development and management of the National Head and Neck Audit has moved from the Health and Social Care Information Centre (HSCIC) to Saving Faces – The Facial Surgery Research Foundation. Under this new management team the audit has been renamed the “Head and Neck Cancer Audit (HANA)” and the underlying database software will be provided by Dendrite Clinical Systems. One of the key roles of the HANA project is to assess the whole process of care for patients diagnosed with new primary or recurrent head and neck cancer in England and Wales, and thereby help improve the quality of clinical services and outcomes for patients. Saving Faces are working closely with the British Association of Head and Neck Oncologists (BAHNO) to ensure that HANA focuses on information that is really relevant to real-world patient outcomes.

Frequently Asked Questions

This new audit has been commissioned by the Healthcare Quality Improvement Partnership (HQIP) through an open government tender and a consortium of Saving Faces and Dendrite Clinical Systems was selected to implement the Project. Saving Faces is a charitable organisation dedicated to improving outcomes for patients living with head and neck cancer. Dendrite is a British company specialising in disease registry database systems.

Each hospital in England and Wales that provides specialist care for patients with head & neck cancer are required to submit their data to the national registry on a regular basis.

The HANA registry is designed to collect data on patient demographics, disease profile, treatments and outcomes.

Yes – the registry holds detailed clinical records on patients but the whole system resides on a secure server within the dedicated NHS computer network.

The new HANA project aims to achieve several key objectives, including, up-to-date information on best practice in this clinical area, an invaluable research tool for clinicians and improved outcome information for patients and their families.

The HANA team is committed to sharing data and ensuring the greatest possible use comes from the hard work of collection. There will be a Committee that will review all requests on a case-by-case basis to decide which ones will be approved.

Timeline

18 June 2015

18 June 2015

HQIP awarded National Head and Neck Cancer contract to Saving faces

24 August 2015

24 August 2015

Dendrite were confirmed as IT partners for HANA

25 Sept 2015

Transfer of legacy DAHNO data to Dendrite approved by Confidentiality Advisory Group

30 Sept 2015

Audit lead visits to MDT commenced

9 November 2015

First HANA Steering Group meeting

11 December 2015

Prospective HANA data collection approved by  Confidentiality Advisory Group

6 January 2016

Historical DAHNO data transferred to Dendrite

18 January 2016

Audit lead completed 50 MDT visits

29 April 2016

HANA website will be launched

August 2016

Pilot of web-based data entry for HANA

12 Sept 2016

HANA Direct-data-entry portal goes live

1 November 2016

Mandatory HANA data collections begins

December 2016

Stakeholders’ meeting